The HAEA offers helpful information about symptoms and treatment as well as tools and resources for those living with the disorder. Hereditary Angioedema International Find information and news related to the causes and treatment of hereditary angioedema. An interactive world map on the website connects patients to other organizations, care centers, hospitals, and available medication. All About HAE Patients can find ways to manage their HAE, a range of treatment options, and useful tips for living with HAE here. American Academy of Asthma and Immunology Find information related to the symptoms, diagnosis, treatment, and management of hereditary angioedema, as well as facts about allergic angioedema. HAE Canada Formed in 2010, this organization works with physicians, nurses, and other healthcare professionals to assist those living with hereditary angioedema. You’ll find helpful resources and links, informational videos, news, events, and campaigns. The OnePath program connects patients with a patient support manager who helps them navigate insurance coverage, find treatment access, coordinate product training, and learn about financial assistance options. NeedyMeds Find help with the costs of medicine and treatment with NeedyMeds. You’ll find a frequently updated list of hereditary angioedema diagnosis-based assistance programs with contact information. The Assistance Fund Apply to the Assistance Fund for financial assistance for copays, health insurance premiums, and healthcare for children and adults. CSL Behring CSL Behring makes two drugs used to treat HAE, Haegarda and Berinert. The company helps patients coordinate with specialty pharmacies to cover their out-of-pocket copay costs, and secure financial assistance with both drugs. Connect with a community of patients living with hereditary angioedema and find informational events designed to increase your understanding of HAE. All About HAE A Facebook community for patients living with hereditary angioedema. Find up-to-date information, events, and interactive videos about HAE. HAEA Cafe Sign up for this online community to connect with insightful webinars, breaking news, and live chats with other members. Hereditary Angioedema Request access to this closed Facebook group to connect with more than 2,000 members, who regularly discuss topics such as how to stay on your medication routine and how to stay calm during an attack. U.S. Hereditary Angioedema Association Find support for patients living with hereditary angioedema and their family members in the United States through HAEA’s Facebook group. HAE Day HAE International puts on an annual walk to promote HAE Awareness Day, which is May 16. The organization also offers useful online brochures that explain the pros and cons of family testing, the test process, and how to interpret your results. HAE UK This organization offers several helpful features, including a printable weekly diary tracker that encourages you to keep a record of your attacks. Discover the real stories of those who have been diagnosed with hereditary angioedema. You’ll find tips about treatment, management, and living with HAE. Andy Long Bass Player A native of South Wales, Andy Long offers his journey of living with hereditary angioedema, from early childhood to today. Advance HAE offers an app that makes it quick and easy to create your own personal record of life with HAE. You can store all the information about your attacks and treatments. The app also lets you create personalized, user-friendly graphs based on the data you enter. HAE Attack Tracker This app lets you keep a journal about the frequency, duration, location, and severity of your HAE attacks. You can also keep photos of your physical symptoms and generate attack reports that could improve the management of your disease. Every two years, HAE International welcomes patients, caregivers, healthcare professionals, and industry representatives to the HAE Global Conference. This meeting is the largest gathering of its kind with a sole focus on HAE topics.
